Mourning the Living

“One of the hardest things you will ever have to do is to grieve the loss of a person who is still alive.”

Unknown

 

I’ve been thinking about my mom a lot since I moved to Florida. I thought about her quite a bit when I lived back home, too, but it was in a different way. I used to sit and worry about her all the time. If I wasn’t with her, I would wonder what she was doing and how her day had been. I would look at the clock and think, “Ok, it’s 6:30pm. I wonder what Mom is doing right now. I wonder if she ate her dinner. I wonder if she’s upset today.” I thought about her constantly. When I moved to Florida, I continued thinking about her all the time, but I noticed it was different. I wasn’t really worrying about her as much, but I was still thinking about her constantly.

I realized that I was thinking a lot more about my “old mom.” For a while, it seemed that no matter where I went or what I did, something would remind me of my “old mom” and I would start missing her like crazy. I would get so sad and have this painful yearning for her. I reminded myself that there was no reason to be missing my “old mom” any more now than I did back at home. My mom was still the same as she was when I moved. Nothing had changed, really. Well, except for the fact that I had moved far away and I couldn’t see or talk to my mom whenever I wanted. What was it about being away that made me miss the “old” her so much?

Anyone who has a loved one with Alzheimer’s knows that after a while, your loved one becomes so dramatically different from the person she once was. As you begin to accept and adapt to the changes you see in your loved one, you also begin to miss the person she used to be more and more. I began missing my “old mom” years ago, but it was often overpowered by my worry and concern for her wellbeing and care. I was always too busy thinking about what was going on with her that I didn’t think about or miss the “old” her all that much.

After I moved away, my caregiving duties and obligations largely diminished. I knew that my mom was being taken care of at home and I didn’t really need to worry about it that much anymore. My thoughts began shifting back to my “old mom” and how much I missed her. It certainly didn’t make it any easier that I couldn’t just call my mom any time I felt like I wanted to talk to her. My mom hasn’t been able to talk on the phone for a while now and her conversation skills are extremely limited. I would have to get by with the occasional Facetime session with my mom whenever my dad was home and available. Any time is not always a good time to attempt a Facetime call either. Honestly, they are few and far between.

So, here I am, living in Florida, missing the hell out of my mom, and not able to communicate with her very often. I began to realize why missing my mom suddenly felt so different. Being far away from her with very limited contact made me feel as if she was already gone. I was remembering her and missing her as if she had died. I felt like I was trying to move on with my life after her death. Every little thing reminded me of her and made me feel sad. I felt like I was in mourning. Mourning a death that has yet to come.

Come to think of it, I’ve felt this way for the last eight years since my mom was diagnosed. I could be sitting right next to my mom, holding her hand, but I still miss her. I could be talking to her or hugging her, but it still doesn’t feel quite right. I’m missing whole parts of her that are now long gone. I’m missing parts of myself, too. To be honest, I haven’t really felt like myself in years. I feel like someone who is just going through the motions of life, doing what I’m supposed to do, but without any real purpose. I feel like I’ve just been trying to get by, like I’m just trying to move on with my life. I’ve been mourning the loss of my mom for so long, but she still hasn’t gone anywhere. That’s the thing about mourning the living. You’re grieving for a long period of time with no closure. If you don’t have closure, how can you try to move on? You can’t. You don’t. You just hang on to whatever thread you have left. You put one foot in front of the other. Day in and day out. You do this for years, sometimes ten or more, until you find yourself actually hoping that she will just die already because you don’t know how much more you can take.

Although my mom is alive, I still miss her like crazy. I miss what was and I miss what might have been. I look at other women my age who are out shopping or having lunch with their moms and I think, “I wonder what that’s like.” I wonder if we would have texted each other. I wonder if she would have helped me pack for Florida. I wonder if she would have come to visit me. I think about all of the things I never did with my mom and all of the memories that we’ll never have. I do all of these things and yet I know that she’s still alive. The worst is yet to come.

Mourning the living feels just like mourning the dead. No one has died, but there has been a death. Mourning the living takes such a toll on a person that you feel like an empty shell yourself. Then, there are two empty shells in the room, you and your loved one. It’s hard. Really, really hard. Like I said, I haven’t felt like myself in years. It’s easy to lose yourself in caring for someone else. It’s even easier to lose yourself in mourning that same person. Put the two together and you’re just a hot mess.

As for me, yes, I’m still a bit of a hot mess, but I’ll keep plugging along.

 

mama hugs

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8 thoughts on “Mourning the Living

  1. Thank you for sharing your story with such honesty and courage. My mother is in the moderate stages of alzheimers (we are in year 7) and everything you said really resonated with me. I feel like I don’t know this person sitting beside me anymore. I, too, miss my “old mom”. I miss being able to talk to her, especially when I’m having a hard time with something, or I’m feeling stressed or worried, or to ask for her advice, suggestion or opinion. I can’t do that anymore, even though we eat breakfast together every Saturday morning. . It’s very lonely and isolating and hard not to get really sad about that sometimes. I miss her calling me for my birthday, or calling me when I was sick to check in and see if I was feeling better, and sharing a meal at a restaurant as a family. That’s all gone now, even though she is still here, and at times I feel disappointed, sad, afraid for her, and terrified of what’s still to come. It’s so hard to watch the decline and witness loss after loss that just feels incessant at times. Just when you’ve accepted the current new stage/situation she is in, a new loss or worry or fear or health scare slaps you hard in in the face. And I worry about my dad, who is her main caregiver. I worry for his physical and mental health, and my heart breaks for him at having to say good bye every day as pieces of his wife of over 50 years are disappearing right before his very eyes. I’m tired of looking for the “silver linings” and finding ways to “celebrate what remains” all the time. I miss being “carefree happy” , as I used to be before she got diagnosed. I miss feeling pure happiness that’s not short-lived because the alzheimers, coupled with the worry, and grief are like a dark cloud that just sit on your shoulder, always there, hovering. I miss our family holiday celebrations that are now so different and hard to look forward to. I miss the old me and the old her. Hopefully they will come up with something soon that can stop or at least delay the progression of this awful disease.

    Liked by 1 person

    1. Hi Nancy! Thank you so much for reading and reaching out. So much “yes!” to everything you just said. Literally, every single thing. I feel like I could’ve written this myself. Birthdays and holidays are just any other day for us now. I miss everything that was and anything that will never be. I isolate myself from friends at times because they just don’t get it. I worry so much about my dad and my heart breaks for him every day. So many parts of my life that I can’t share with my own mom and dad. It hurts so much. I know all of these feelings and thoughts all too well.

      One thing I did for my birthday was video my mom singing happy birthday to me. Now I have it to listen to every year on my birthday, since she no longer knows when it is or even what a birthday is. It’s not the same as her calling me on my birthday, but it helps. Hang in there! I’m right there with you!

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  2. Wow! Just wow! I couldn’t have said this any better myself. It is so hard to explain to others what I go through and why I act the way I do some times. So many just don’t get it. Thanks for the honesty. I know that isn’t easy to be so brutally honest but this is a horrific disease and affects every aspect of our lives.

    Liked by 1 person

    1. Thank you so much! I try to be as honest as possible because I know many other people feel the same way. We shouldn’t feel like we can’t talk about our feelings. I want everyone to know that what they are feeling is normal in our situation. Thank you for reading!

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  3. I can’t relate so much! Took the words right out of my mouth. My dad and I have felt this way for a long time with my mom. There’s actually a term we found, it’s called Anticipatory Grief. Made so much sense after we found that. Love your blog!

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  4. Thank you so much, especially for the paragraph that ends in these words (I’m going to insert a few words for my situation, because I know it will help me to do that) : “To be honest, I haven’t really felt like myself in years. I feel like someone who is just going through the motions of life, doing what I’m supposed to do, but without any real purpose. I feel like I’ve just been trying to get by, like I’m just trying to move on with my life. I’ve been mourning the loss of my husband for so long, but he still hasn’t gone anywhere. That’s the thing about mourning the living. You’re grieving for a long period of time with no closure. If you don’t have closure, how can you try to move on? You can’t. You don’t. You just hang on to whatever thread you have left. You put one foot in front of the other. Day in and day out. You do this for years, sometimes ten or more, until you find yourself actually hoping that he will just die already because you don’t know how much more you can take.”

    You have summed it up so simply and so accurately. Best wishes in your journey.

    Liked by 1 person

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